Disabled Expectations

Honest conversations with dad’s who have kids with disabilities. We are not just talking about the journey, we are living it. Each conversation in Disabled Expectations is about embracing the struggle, facing the pain, and finding the strength through the stories we tell. Each conversation you hear is a step toward building a community of fathers who get it, who know the complexity of loving a child whose path looks different from what you expected.

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Episodes

Friday Apr 11, 2025

In this episode of Disabled Expectations, I sit down with Jeff Weir, a dad whose son Landon lives with Schaaf-Yang Syndrome, an extremely rare genetic condition. Jeff opens up about the joys, heartbreaks, and traumatic events their family has faced both in and out of the hospital.
This is a raw, honest, eye opening conversation about parenting through uncertainty, holding on to hope, and finding strength in the middle of unimaginable circumstances. Jeff's vulnerability will encourage you, challenge you, and remind you that even in the hardest seasons, you're not alone.
💡 Whether you're a parent, caregiver, advocate, or simply someone who wants to understand more about life with disabilities—this episode is for you
Sponsored by Certain Hope Community – connecting families who have children with disabilities. Learn more at certainhopecommunity.org
📧 Contact us: disabledexpectations@gmail.com

Saturday Mar 29, 2025

In this episode of Disabled Expectations, I sit down with Cameron Kinney, dad to Wells, who has Dandy-Walker Syndrome. We dive deep into the importance of being open and honest as dads, the mental and emotional weight of raising a medically complex child, and the challenges of multiple extended hospital stays.
Cameron shares his raw experiences—the fears, the resilience, and the unexpected strength that comes from walking this road. If you're a dad navigating similar challenges, or you just want a real, unfiltered look at fatherhood in the world of disability, this one’s for you.
📩 Contact us: disabledexpectations@gmail.com
🙏 Sponsored by: Certain Hope Community
🔔 Subscribe & Join the Conversation!

Monday Mar 17, 2025

In this episode of Disabled Expectations, I sit down with Ben Lawrence, a dedicated father whose son, Jory, was born with spina bifida. Ben shares how he and his wife have prioritized building a life where everyone has a seat at their table—both literally and figuratively. We dive into the power of community, the realities of accessibility, and how their faith has guided them through the journey of raising a child with a disability.
Tune in as we explore the intersection of faith, perseverance, and fatherhood in the face of challenges.
This episode is sponsored by Certain Hope Community—bringing families together so no one walks this road alone.
www.certainhopecommunity.org

Monday Mar 10, 2025

In this episode of Disabled Expectations, I sit down with Collin Hubbell, whose daughter Palmer has a rare disease called Bilateral open lip schizencephaly. We dive into the difficult reality of diagnosis day, the strength behind a marriage that thrives through challenges, and the everyday frustrations of handicap parking. Plus, we even get into some mustache talk—because why not?
Certain Hope Community sponsors this conversation, bringing families together who navigate life with disabilities.

Wednesday Feb 26, 2025

In this episode of Disabled Expectations, I sit down with John Arlt to talk about his family's journey through his daughter's hemispherectomy—a life-altering brain surgery—and what it means to trust God in the hardest moments. We dive into faith, fatherhood, and the realities of raising a child with a disability. John shares his raw and honest perspective on navigating medical challenges, leaning on faith, and the strength it takes to be a dad in this space. Don’t miss this powerful conversation about encouragement, surrender, and hope.
Sponsored by: Certain Hope Community – Families Navigating Disabilities Together.
www.certainhopecommunity.org
 

Thursday Feb 13, 2025

In this episode of Disabled Expectations, I sit down with Dan Vainner, a dedicated husband, adventurer, and all-in dad to a son with Au-Kline Syndrome—a rare condition with only about 100 known cases worldwide.
We dive into:
 The challenges and joys of parenting a child with a rare diagnosis. 
How Dan and his wife navigate marriage through it all. 
The relentless journey of advocating for their son. 
And yes—why you don’t want to challenge Dan to a puzzle!
This conversation is raw, real, and filled with encouragement for any parent on a similar path.
Don’t forget to like, comment, and subscribe!
 Have a question or a takeaway? Drop it in the comments below! Sponsored by Certain Hope Community—connecting families raising children with disabilities. certainhopecommunity.org

Contact us: disabledexpectations@gmail.com

Thursday Jan 23, 2025

In this episode, Baron Grutter shares his journey as a dad to a child with Type 1 SMA. With 12 years of experience, he offers powerful insights, hard-earned wisdom, and encouragement for families navigating disabilities.
Sponsored by: Certain Hope Community.

Sunday Jan 19, 2025

In this Episode you will get to know Tim. A real family man who puts in the work to be the best dad he knows how to be. He is honest and open about having a daughter who has disabilities. 

Friday Jan 17, 2025

In this episode, Mike shares his family’s incredible 11-month journey in the NICU with their son, Evan. He opens up about the challenges they faced, how they found strength to persevere, and the importance of saying “yes” to support from friends and family. Mike offers wisdom and encouragement for dads raising children with disabilities, reminding dad’s they are not alone on the disability journey. 
Contact us: disabledexpectations@gmail.com

Friday Jan 17, 2025

In this episode of Disabled Expectations, Dave Hodge shares his story and insight into the disability world. We cover everything from work to faith, family and construction projects! You will love Dave, stay till the end to get his advice for new dads who have a child with disabilities.
 
📧 Contact us: disabledexpectations@gmail.com
 

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